Unlucky, 2016, Video (3 min 45 sec).
There is a component of chance intrinsic to this disease. Some neurodegenerative diseases like Huntington’s disease and Alzheimer's are hereditary. A child whose parent carries a genetic mutation for one of these diseases has a 50-50 chance of inheriting the gene. Thats a one in two change or the flip of a coin.
I’m dwelling on the meaning of chance as well as illness narratives in the video which features a lone voice telling an intimate first-person story about going to the hospital and receiving a diagnosis for HD. An unfinished 3D scan of my head is turned by an unseen force. As the story progresses it becomes clear that mistakes, miscues and flubs have been kept in the audio, highlighting the fact that the reading is a performance rather than an account.